Book Board Chat

Beth, I'm so sorry about your son's diagnosis. I know the progression is different with each person, but even "devastating episodes" don't have to be completely devastating. My sister was diagnosed 29 years ago. She was only 29. Her first episode (that we recognized as such) back then was horrible. She lost all bodily control and needed 24 hour care for about a week. They treated her heavily with steroids. She has had several episodes since then, sometimes several within the same year, also requiring steroids. She usually recovers nearly to where she started. Though her disease has progressed and her health has declined somewhat, she gets along very well; still walking - just not fast or far. She hates the weekly Avonex injections but they have been miraculous for her.