Book Board Chat

Sam - Thanks for the inquiry. I'm doing fine, Am sorry I mentioned my cancer again, I only mentioned it to Maureen at one point as we were taking the same medications & suffering the same reactions. In 2006 I was making & selling newsboys caps on eBay with matching scarves as a way to cover up hair loss due to chemo. I sent Maureen one or two as a gift & Kacey bought a few from me,never mentioning she was ill. If I knew she had cancer I would have sent them as gifts.

Glad to see Desertprincess again.

Has anyone hear ever heard of something called "Complex Regional Pain Syndrome"? My 13 year old granddaughter was recently diagnosed with it after 6 months of running to dozens of MDs she was finally diagnosed as having this syndrome. Her medication hasn't helped much, my granddaughter is on the waiting list to enter a "CRPS" pain clinic in PA Childres Hospital. The wait is 3 to 4 months. They live in DE & the only other clinic like that is in Cleveland, the wait is also about the same. I don't think there is even one in NY.

If left untreated nerve damage can cause muscles to atrophy. My daughter is presently taking her to Yoga, Physical Therapy, Swimming (she was on a swim team in school), & acupuncture. She also goes to a Chiropractor & uses an eliptical exercise machine daily. They are doing everything possible to keep her arms moving. Pain meds make her loopy in any strength so they cannot be tolerated. The poor child is in constant pain.

I'm mentioning this condition hoping someone hear knows of this condition & can suggest perhaps another avenue my daughter might try. She is looking into Chinese herbs right now. Of course she will not do anything without consulting the MD at Nemours Dupont Hosp. in charge of the childs case.